Deb Discenza

Deb Discenza, BA, MA



Phone: 703-721-5838

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Combining fields in technology and publishing, Deb Discenza has created PreemieWorld as the go-to space for education, support, and resources for the preemie community including the acclaimed book, The Preemie Parent’s Survival Guide to the NICU. Prior to PreemieWorld, Deb founded and ran the award-winning Preemie Magazine.  Most recently, she is a co-founder of the non-profit Alliance for Black NICU Families, and the Founder of Crystal Ball Health, a data portal code named “Preemie Crystal Ball”.

When not sought after for speaking engagements, media, and news-related spots for the medical and general public, Deb provides public service to her community in the form of being a founding member and steering committee member of the National Premature Infant Health Coalition, a founding member and former Leadership team member of the Preemie Parent Alliance (now NICU Parent Network), and a Leadership Team member of the International Neonatal Consortium. She is also is a regular Column Editor for the Neonatal Network’s Neonatal Network Journal, and a columnist for both the quarterly newsletter for the Council of International Neonatal Nurses (COINN) and for Neonatal Intensive Care magazine.