Dr. Homira Osman is the VP of Research & Public Policy at Muscular Dystrophy Canada and co-leads the Neuromuscular Disease Network for Canada. Her background is in clinical audiology, neuroscience and knowledge translation. In her role, Dr. Osman has overall strategic and operational responsibility for all elements of research, education, clinical relationships and advocacy work. Dr. Osman has a deep passion for evidence-based decision-making within policy and health care systems, and is dedicated to patients and families affected by neuromuscular disease.
At Muscular Dystrophy Canada (MDC), Homira provides leadership to a broad range of initiatives set in motion to improve the knowledge and awareness of neuromuscular disorders and ultimately improve the quality of life of infants, children, adults and family members affected by NMDs across Canada. Homira works closely with persons with lived experience, physicians, allied healthcare professionals, researchers, academic, community and industry partners to engage, learn and share in knowledge generation, synthesis, and mobilization and ensures that evidence turns into action. As such, Homira also oversees the Public Policy portfolio where she engages with officials in the federal and provincial governments to represent the voices and experiences of people living with NMDs. Homira believes that research, advocacy and action are inseparable from one another. She works to advocate for policy changes that will have a meaningful impact on people living with NMDs, such as fair and timely access to innovative medicines and therapies. She is responsible for analyzing the impact of public policy and regulations from government, health stakeholders, and academia, patient input submissions and developing policy positions that may positively influence health-related and equitable public policy.